Record of Herbal Treatment of Epidermolysis Bullosa for Nagena's son, UK


TCM China:	Record of Herbal Treatment of Epidermolysis Bullosa for Nagena's son, UK


	Dear DR Good Morning 4th day baby feeling alot better, he does not have temperature and is alot alert. Has a new blister on foot, the water in the blister is not water but has a white substunce. He does be sick but not the medication. 5th day my baby feeling better looking around has not got any new today. 6th day still feeling good no temperature taking medication very well another blister under arm and his belly button is still very sore and is still does look like a belly button, but just like a sore round poped up kind of a spot. His feet and nail bends are very sore because i still have to put bandages on them. passed stool but after passing stool passed a bit of blood it could be from the blister inside or blisters which are still in the nappy are very sore. 7th day very alert no temperature making sounds like baba mama which he has not said before very happy all family, new blister in nappy area but i do not need to pop because they pop by themselves before a use a sterle needle to pop them. New blister on face. 8th day baby feeling smiling and making sounds which is brillient for the family has another blister on face and under the chin. Baby sleeping more does baby have to sleep more or less? 9th day baby feeling good and baby had old blisters near neck have dried and have a top layer of dryness on the skin. The blisters on the skin the old ones are still very sore. Still baby have now nails growing. Still after food has been sick. 10th day feeling good no temperature have not used any pain medication good still have new blisters behind ears but ears are a lot better since baby taking herbal tea. Dr what could i do more to help you?, and please could you send more medication because it will take two weeks to reaches us and i wish my baby continue with this medication. THANK-YOU for your kind support . mum Nagena -------------- 2006-2-16 Dear Nagena, Thanks so much for your kind email. It is very kind of you to tell us your baby's condition. Please be patient to go on the dosage, and let us know the progress. Thanks. Hope your baby get a good result. All best wishes to your honorable family! Dr. Ming --------------- To: tcmtreatment@tcmtreatment.net Sent: Wednesday, February 15, 2006 5:12 PM Subject: Re: EB DESEASE DEAR DR HELLO! The first day of the dosage was 12th feb 2006; conclusion, baby had meal and then was given its first dosage second was given afternoon. The second day; baby did not feel well had temperature and new blisters on the skin gave calpol parecetamal, but still feeling very tyed. Know being sick all day. The third day; baby feeling a little bit better but have been sick couple of time, he does not be sick when i give the medication but after an hour or so. still have blisters on nappy area. but baby feeling alittle bit better than yesteraday not sick in afternoon, some areas on the skin started to show healing will be able to know more result today. DR do you think it is" good progress" or still need to be patience. THANK-YOU babys mum NAGENA ---------------- 2006-2-14 DEAR DR THANK-YOU AGAIN I would like to ask you some question regarding the medication for my son. First i would like to know if there are any spear leftover medication what would i do meaning the liquid? what do i do with the dry powder after it is made? what affact will it make to my babys condition, what will i see happening? will he be more sleepy or just tyed? he most times gets a high tempreture what do i need to do then? will his urine colour change or even the stools? THANK-YOU NAGENA --------------- 2006-2-13 Dear Nagena, Glad to know you've recieved the package. Pleaase use our cloth to prepare the tea and have it for your son after meal. As to the daily help to him, please preactice as your usual preactice. We hope in recent 20 days, the baby could fine some impriovement. After decocting twice, the decocted powder could be tossed away. Please let us know his progress. Best wishes! Dr. ming ---------------- To: tcmtreatment@tcmtreatment.net Sent: Sunday, February 12, 2006 7:02 PM Subject: Re: EB DESEASE YES THANK-YOU I have received it and today i have made one dosage for my baby . Could you tell me if i have to give the medication after food or before. Can i use my own cloth or do i have to use the plastic cloth bags that you have provided . THANK-YOU AGAIN DR.MING mum NAGENA ---------------- 2006-2-9 Dear Nagena, Thanks so much for your kind email. We are very sorry to know you have not received the herbal tea. Today, we contact our post office, they tell us the herbal tea had been posted to you. The tracking number is RR 3468783936 CN. If you are convenient, please go to your local post office to check. Once you receive the herbal tea, please let us know. Thanks a lot for your great patience and effort. Hope you receive the order soon. All best wishes to your noble family! Dr. Ming --------------- To: tcmtreatment@163.net Sent: Thursday, February 09, 2006 8:31 AM Subject: EB DESEASE DEAR DR I have not received any medication yet and it has been two weeks know i do not know what to do so please let me know what i need to do? THANK-YOU. NAGENA babys mum ---------------- 2006-2-2 Dear Nagena, Thanks so much for your kind email. You could continue with your sons bandages and the infrtrini milk, when his medication arrives. If there is anything we could do for you, please feel free to let us know. Thanks. All best wishes to your noble family! Dr. Ming -------------- To: tcmtreatment@163.net Sent: Thursday, February 02, 2006 3:12 AM Subject: Re: Incoming order processed Order Number 223 3341626 Vendor 75583 HAPPY CHINESE NEW YEAR TOO YOU AND ALL YOUR STAFF. Dear Dr. Could you please tell me if i should continue with my sons bandages and the infrtrini milk i should continue, when his medication arrives, i like to be prepared. PLEASE do let me know thank-you again. NAGENA(mum) ---------------- 2006-2-1 Dear Nagena, We are very much pleased to help your dear baby. Hope our formula is very helpful to your dear baby. Then maybe we could meet here each other in our hospital. Hope your dear baby could recover soon! Happy Chinese new year to you, need any assistance,please let us know. Dr. Ming ---------------- To: tcmtreatment@tcmtreatment.net Sent: Sunday, January 29, 2006 9:40 AM Subject: Re: Incoming order processed Order Number 2233341626 Vendor 75583 Dear Dr. Ming Thank-you for posting the medication and also for helping me and my family in this time of need. You will not believe me that how happy me my family were when I received your email saying that you will treat my baby with a disease that even we all still yet now not much about. It was like our prays have been answered, but doctor my son only weighs 6.18kgs, and also he is on special infratrini milk please could you tell me what i need to do. I also put bandages on his open wounds which are a lot of areas on his body, so could you tell me what to do when the medication arrives. THANK-YOU AGAIN for helping my baby in-need. Fist the doctors in uk told me and my family that my son when he was born that he only has few months to live then they told us 6 months, know he is 10 months old they told me he will not reaches 2 years old. Dr could you tell me after reading all the fax papers that what they say is possible? Could you tell me what other food could i give my baby thank-you very much for your kind support and when my baby is a lot better we will come to china and visit you and show his progress. --------------- 2006-1-27 Dear Nagena, Thank you so much for your kind email and funds transfer by your credit card. It is very kind of you! Thanks a lot! We have posted your package by air mail today. It will take one to two weeks to your country in common condition, please notice it. Once you receive the package, please let us know. Thanks! We have made 20 even dosages for you. A piece (dosage) a day. Please decoct a dosage once per day. The concrete steps are that first, put the herbal powders in a jar or a mug with about 200ml to 250ml water. Soak the powders for 20 minutes. Heat the water to the boiling point with strong fire, then make the fire to be mild and decoct (i.e., simmer) the herbal powders for about 30 minutes. When the herbal powders are being decocted, please frequently stir the powders and water with a stick or a scoop so that the powders will not stick to the edges of the jar and the powders will not be burned. This is very important. When the decoction is lukewarm, please filter the decoction with the cloth we offer you. Wrap the powders with the cloth and use the power of your hands to press the cloth bag till all the decoction is filtered out and the herbal powders become dry.Please take 20ml in the morning. Take another 20ml in the afternoon after making it lukewarm. During the period of using medicine, please take care the following things. Have more nutritious foods; have a due consideration to good rest; take less pungent or fatty foods; relax the mind. If you feel the tea is too much bitter, you could put a little bit sugar into the tea. Also when using our products, it is better not taking other medications and treatment in the meantime. By the way, we reported it as Chinese tea powder, please notice it. Your health is very important to us. If you like, our honor to be your permanent health advisor to you, your family and friends for free. Best wishes to you! Dr. Ming --------------- 2006-1-25 Dear Nagena, Thanks so much for your great patience to send the fax to us. We have received the fax for your baby's health information. Thanks a lot. After we checked it carefully, and considered it comprehensively, we would like to prescribe a herbal formula and make it into 20 days herbal tea for your 10 months old baby's epidermolysis bullosa. Is that OK? As to the way to transfer your kind funds to us, you could use Western Union, or check, or bank transfer, or credit card online payment, please see http://www.tcmtreatment.net/paymente.htm or http://www.tcmtreatment.com/paymente.htm Please confirm your shipping address, so that we could post the herbal tea to you directly and timely. Thanks. Looking forward to hearing back from you soon and best wishes! Dr. Ming --------------- 2006-1-21 Dear Nagena, Thanks so much for your prompt response. Our fax number is 86 745 2390037. Once we receive your fax, we will prescribe the formula for your baby. Is that OK? Looking forward to hearing back from you soon! Dr. Ming --------------- To: tcmtreatment@tcmtreatment.net Sent: Friday, January 20, 2006 7:46 PM Subject: Re: Herlitz Junctional Epidermolysis Bullosa. is it not possible that i could fax you the booklet that explains it even better than my self bye completing the form which has less information about my babys diesease.. It will give you ore indepth of his illness.I if you wish send you the biopsey result to. PLEASE let me know as soon as possible. THANK-YOU Nagena(mum) ---------------- 2006-1-20 Dear Negena, Thanks so much for your kind email. We could send the medication for a 9 months baby in UK. If you are convenient, please let us know the baby's health information by reading and ticking off the items of patient form, so that we could make a correct diagnosis for you. Thanks. http://www.tcmtreatment.net/form.htm or http://www.tcmtreatment.com/form.htm Once we receive the baby's health information, we will prescribe a herbal formula for him. Is that OK? Looking forward to hearing back from you soon and best wishes! Dr. Ming ---------------- To: tcmtreatment@tcmtreatment.net Sent: Friday, January 20, 2006 1:23 AM Subject: Re: Subject: Diagnosis: Herlitz Junctional Epidermolysis Bullosa. I would like you to tell me, is it possible for you to send the medication for y 9 month old baby in uk, if so please let me know as soon as possible . Thank you. Because his condition is not good , as days are going by he is suffering more ...so please let me know . THANK-YOU mum -------------- 2005-12-23 Dear Nagena, Thanks for getting back to us. You are warmly welcome to our TCM hospital for the treatment. We are sure it would be guarantee a better treatment result to your baby. As to the daily costs here, it would be just US$60.00 each day, including herbal medicines, acupuncture, massage and medical service, room and TV set, etc. If you do not mind, please try to stay in China for 1 to 2 months for the full treatment. Best wishes! Dr. Ming --------------- To: tcmtreatment@tcmtreatment.net Sent: Thursday, December 22, 2005 8:13 PM Subject: Subject: Diagnosis: Herlitz Junctional Epidermolysis Bullosa. Thank you so much for your help. But the doctors might not let my son travel soo far because of his condition. I am in a situation were i will travel if i have to, and also could you tell me how much it will cost and also will we get any accommadation were the hospital will be. THANK YOU AGAIN FOR YOUR SUPPORT. Nagena(babys mum) ---------------- 2005-12-22 Dear Nagena, Thanks for your kind reply! Hope our TCM treatment will help your little baby so much. If you do not mind, it is better to consider traveling to our TCM hospital for his treatment and get a comprehensive treatment here and guarantee a better result. You could try to get three a months' visa and stay in China for 1 to 2 months. we are located in Huaihua City, which is in the west part of Hunan province, mid-south of China. You could fly to Shanghai and take a direct train from Shanghai to our city Huaihua. Best regards to you and your honorable family ! Dr. Ming ---------------- To: tcmtreatment@tcmtreatment.net Sent: Wednesday, December 21, 2005 11:07 PM Subject: Diagnosis: Herlitz Junctional Epidermolysis Bullosa. There has never been anything of this sort of desease in my family before. My son was born with this condition , and also the doctors in uk told me he has few months to live. but he is still fighting it, i will copy you the diagnosis if you wish to know about it more, so please let me know as soon as possible . But i can explain you what it is . It is blistering on the skin and also internal blistering , his is saw fragile that if i hold him under his arms his skin the next hour or so he will have a blister, wihich is filled with liquid substance. Then i have to us a sterile needle to bursit it, and then put mepitel and mepelex transfere. PLEASE Could you let me know if thier is any hope for my baby boy. THANK-YOU Nagena(baby mum) -------------- 2005-12-22 Sent: Wednesday, December 21, 2005 10:45 PM Subject: junctional epidermolysis bullosa This is about my 9 month old baby who has this condition the searve one as the doctors predicit, so could you let me know if i can get help"PLEASE" . THANK-YOU Nagena(mum of baby). --------------- 2005-12-21 Dear Sir/Madam, Thank you so much for your kind email and trust to us. Our pleasure to help you and we are sure that your condition will be improved by our TCM treatment. If you do not mind, please email us more details about your symptoms and disease history so that we could research carefully. Or there is another more convenient way for us to know your personnel health problems, if you do not mind, please fill out our patient form here so that we could get the details to help our accurate diagnosis. http://www.tcmtreatment.net/form.htm or http://www.tcmtreatment.com/form.htm This form is very important, many patients who have got good treatment result from us did this very well, please check http://www.tcmtreatment.com/forum/forum_topics.asp?FID=11 Thanks for your understanding and cooperation. We hope you will recover soon relying upon our good service. Your health is very important to us. If you like, our honor to be your permanent health advisor to you, your family and friends for free. Looking forward to hearing from you and best wishes to your noble family! Dr. Ming --------------- To: tcmtreatment@163.net Sent: Wednesday, December 21, 2005 12:07 AM Subject: juncctionl epidermolysis bullosa need help" please"